I told ya so...

My Cancer has been in remission for 6 months now,
I went to see Dr. Zu today (my oncologist) and he was happy
to tell me, I'm still in remission! (I already knew that, but it was nice to hear it)
There is no trace of the Cancer in my blood work.
"Everything looks great, see ya in 6 months."
Life is good.

In other news, I joined the study, here is the link to read about it:
http://www.clinicaltrials.gov/ct2/show/NCT00598351?term=natural+history+of+NF2&rank=1
Today I mailed my most recent MRI's, family history, a summary of my nf2 experience, etc.

Good qoute....

Forget traditions! Forget conventionalism!
Forget if the world will say weather you're in your place or not in your place.
Stand up and be counted.
Do your thing, looking only to God (whoever your God may be)
and your conscience for approval.
~ S. Crisholm

Never again...

Yesterday I had the nerve conduction study.
OH. MY. GOSH. It was horrible.
You guys warned me,
but I honestly thought all your warnings were exaggerations.
It was barbaric, like something out of the dark ages.
Never, again.
After wards the doctor told me "both arms have nerve damage"
well no shit! I went thru all that, just to learn that??
I already knew that!
He also said that he did not see any specific reason for my pain,
but that it is likely due to NF2. (duh!)
I was hoping for an "oh, there is the culprit, and here is how we fix it" that was not to be tho. He will send the results of test to HEI,
for Dr. Slattery to review.
Meanwhile, like I said, never, ever again.

...dem bones

The appt went good as far as communication and stuff
and Dr. Chapman and his staff were really nice. He gave me a pretty thorough examination BUT he did not do the dang nerve conduction study.
He said "he needs to know exactly what he is looking for" so i go back to see him on Aug.5th, for the nerve test. Meanwhile i guess he is going to contact
Dr. Slattery...?
He did tell me what the lump/protrusion is....
it is the edge of my scapulae bone. No idea why it is that way tho ;-(

BP MRI REPORT

I got the report from yesterdays BP MRI,
"Findings: no evidence of" blah blah blah.
(that sentence repeats numerous times)
"Conclusion: Negative examination."
WTF? I mean that is great that it is all clear,
but it does not explain my problem.
(or the freaking painful lump at my shoulder area)
And it does not bring me any closer to a solution.
So I am confused as ever now.

I go for that correct MRI, of my brachial plexus tomorrow.
Here is hoping thet get it right this time, and I can get to the bottom of the issues with my shoulder.
Then next week, I go for the nerve conduction study. Never had one of those, I'm curious as to what it will entail.
Stay tuned ;-)

whatever...

I had the MRI (June 11th) that Dr. Slattery wanted. I just saw the written report and I am frustrated...the report mentions my chest, my abdomen and my pelvis.
There is NO mention anywhere on the report of my brachial plexus, which is what Dr. Slattery wanted scanned. It is also the area where I have problems. I think my (coff-coff) GP Dr. Shein, ordered the scan wrong. She ordered a "chest mri".
So....now I get to wait, while the correct scan is ordered, and redo the entire thing.
Thats no bigger, its just an MRI. The part that pisses me off, is the waiting....I have been trying to get my shoulder problem attended to for months now....meanwhile,
whatever is going on in there is getting worse, hurting worse.
I was worried about needing some kind of surgery,
and losing function, but at this rate I hope I don't lose function before
I even get the problem diagnosed.Whatever...