The Good: Yesterday, Steve Otto, my audiologist, tested me for the Freedom BTE (behind the ear) ABI processor, and my program supports it! This is exciting! It would mean I'd be wireless, and the entire device sits behind my ear, like a traditional hearing aid. The best part will be not having to deal with the huge ABI processor I have now. (picture a deck of cards - only a little bigger) Not only that, but I would have 4 different hearing programs mapped into it. With my current ABI, I only have 2 programs. I got to walk around HEI, wearing it, to test it out, it was great! Unfortunately, I had to give it back to Steve before I left. He is such a tease! Hopefully my insurance will cover the upgrade to the Freedom BTE, wish me luck. The Bad: Dr. Slattery said that the Meningiomain my brain, has shown some growth, and needs to come out. This is not a new tumor. We already knew it was there. (left upper side) He thinks the growth it has shown is the culprit behind the problems I have been experiencing with my left arm. He wants to look further at my films and discuss my case with his team, before we make any decisions on how to proceed. I will hear from him in about 2 weeks. So, thats a bummer but it could be worse. Stay tuned.....
The Ugly: My current ABI processor! ;-)
(Today was my 4th and final round of chemo. Treatment was uneventful - that is a good thing. Now I embark on the steriod rollar coaster. That ride should last a few days, and then I'm done, forever I hope. Remember? I'm in remission baby!)
WHEN MY FATHER MARRIED MY MOTHER, SHE HAD 2 CHILDREN ALREADY, DAN & VICKI. MY MOTHER DIED WHEN I WAS 3. MY DAD WAS THEN A 50 YEAR OLD ALCOHOLIC. HE SOLD EVERYTHING AND DROVE TO CA, TAKING ME ALONG. HE LEFT DAN & VICKI. MY MOTHERS MOM ADOPTED THEM. OVER THE YEARS I ASKED ABOUT MY BRO & SIS MANY TIMES. THAT SUBJECT WAS TABOO, HE WOULD NOT TALK ABOUT IT. OR ABOUT MY MOTHER.
HE DIED WHEN I WAS 17 OF CIRRHOSIS. SO 19 YEARS AFTER SEEING MY SIBLINGS I GET A LETTER, FROM DAN SAYING "I THINK YOU ARE MY LONG LOST LITTLE SISTER. PLEASE CONTACT ME. BY THE WAY I AM DEAF." HE WAS IN VA BUT FLEW TO CA TO MEET ME. HE ALSO TOOK ME TO MY SISTERS HOUSE TO MEET HER & HER DAUGHTER,(MY NIECE - RHIANON, WHO IS NOW ON CREW) & THEN ON TO MY GRANDMOTHERS HOUSE. THEY ALL LIVED ABOUT 5 HRS FROM ME IN CA. I SPENT A SUMMER WITH DAN IN VA. I HAD NEVER SEEN A PICTURE OF MY MOTHER, HE GAVE ME MANY.IT WAS A VERY EMOTIONAL TIME. IN 1992, I HAD MRI'S & WAS DX'ED WITH NF2. I HAD ZERO SYMPTOMS UNTIL 1997. MY MOTHER DIED IN 1971, DAN & VICKI DIED IN 1995. ALL DIED DUE TO NF2 RELATED CRAP. MY MOTHER INHERITED NF2 FROM HER DAD.